Unfortunately, we have seen this over and over: Well-meaning older adults who want to support a good cause become the targets or victims of a scam
Why Are There Scams About Ukraine?
Let’s be clear – the people of Ukraine need our support and help. Lives are disrupted, infrastructure is destroyed and peoples’ health, welfare and lives are at risk.
Scam artists are despicable when they take the focus on a crisis and use it to try and rob well-meaning people.
NJ has a high number of Ukrainian immigrants – the 4th largest community in the United States. Many came over in the 1980s to work and raise their families, and are now retired. The headquarters of the Ukrainian Orthodox Church of the USA is based here in South Bound Brook, at St. Andrew Memorial Church.
We know the compassion and concern are real. We just want to make sure the support that people want to give gets to the right place – and not in some scammer’s pocket.
Why Do Scammers Target Older Adults?
We have this struggle – while we want to help older adults with technology and close the digital divide, we also do not want to expose them to fraud. We want people to be safe and be cautious online.
If you get emails asking for donations, check the address it came from. Do not open an email or click on a link unless you really know where it is from. If you go to a website to get information or to donate, make sure you are going to the site you want and have not been redirected to another site with a similar name.
Also, the problems aren’t only online. There has been no slowdown in telemarketing scams.
Telemarketing has become an easy way for fraudsters to scams seniors. Many seniors will always pick up the phone – and have been doing so all of their lives. Since we are in our homes more because of COVID or the cold weather, we hear that phone ringing. As our partners at Senior Medicare Patrol advise: If you receive a call and you do not recognize the caller’s telephone number, do not pick up the call. Let your answering machine screen all of your calls.
How to Help Ukraine
Our advice is to donate through an organization you know and trust, such as the International Committee of the Red Cross or Doctors Without Borders. Locally, if your house of worship is organizing something to help the people of Ukraine, or if there is a Ukrainian church or synagogue you know that is doing something, that might be the best way to ensure that your help will really get there. Also, large church-based charities, usually covering a diocese or synod, are trustworthy places to donate to if they have set up a fund for Ukraine.
We also see that some news stations have screened organizations that are helping Ukraine and are posting this information on their broadcasts as well as on their websites.
Fighting Scams on Any Topic
Be sure that you never feel intimidated or pressured to give money or any personal information to someone you don’t know. If you feel pressure, hang up the phone. If someone, by phone or email, is trying to make you feel flustered or dumb, know that you are not. Scammers are smart, persistent and only need to trick one person to make money.
Also, while it may be hard, share your experience with others. Tell people about the calls or emails you’ve received that seem suspicious so that they can learn. You will be providing a service by sharing our experience with others.
If you suspect that you have been the victim of a scam, report it to cyber.nj.gov or AARP’s toll-free fraud helpline at 1-877-908-3360.
Finally, always keep up your vigilance:
Do not respond to emails if you do not know the source
Initiate calls or conversations yourself
Double-check the website address if you want to donate online – make sure you weren’t redirected
This post was written by author and clinical psychologist Mary Flett, PhD, amid the California fires in October 2020. It is reprinted, with permission, from “Valuing Ourselves as We Get Older,” the first in Dr. Flett’s new three-book “Aging with Finesse” series. Dr. Flett, who worked extensively with aging adults, is the featured guest on the 125th Episode of Aging Insights TV.
I ran away this week. Fled. Gave up the ghost. Abandoned my post. It all finally became too much and so I fled to a place that wasn’t in the pathway of raging fires, appeared to have taken appropriate precautions for COVID and held happy memories of better times for me. I returned home, somewhat chastened, definitely improved in mental state and capacity to face what is a continuing challenge, but also keenly aware of how much I need sanctuary.
I was intimately familiar with the location I chose to flee to. My husband and I had spent untold hours driving around this area, exploring the back roads, dead ends, as well as shopping, dining, and getting to know the locals. Even contemplating it as a place where we would retire. It is incredibly beautiful, has a delightful small-town ethos, not just because it actually is a small town, but also because it has all the big-city amenities that we had come to expect.
But this time it was different. And different in that slightly off-kilter way when the audio is off from the video. The places I remembered were still there, but with new names, and restrictions, because of COVID. Some of our favorite hidden by-ways still remained but were now filled with new buildings and without the quaint, small-town feel. There was an edge to the exchanges with masked store clerks and customer service folks. Lines were long and shelves were thinly stocked.
Maybe it was my mood or maybe it was a combination of the weather, which was overcast but cool, but I could not find what I longed for – that feeling of relief and letting go that comes from being in a familiar, welcoming place.
I stayed in a perfectly lovely hotel, now barricaded with plexiglass because of COVID, but reassuringly hermetically sealed from the room entry to the prophylactic covering on the remote. Still, I felt like a caged animal.
I planned on staying for four days, assuring myself that in that time the danger from fire at home would have decreased, and I would have enjoyed a brief vacation. But circumstances conspired to cut the time short. So I returned home.
Not much had changed at home. The fires continued to burn, the air continued to be unbreathable, and there were still bills to be paid, calls to be returned, and appointments to be kept. But I had changed. This is what is so fascinating to me.
It was as if I had hit the “re-set” button. I realized that my home is my sanctuary, and in no small part because of the miscellaneous unconscious items that I take for granted. My shower head is adjusted to the way I like it. I know just how long it will take for the water to get hot. My coffee set-up is organized and the muscle memory to get that brew done requires only that I remember to boil the water. My favorite channels are easily accessed on my TV and radio. My bed has my sheets and pillows and my chair is molded to fit my body. The pictures on the walls, always just slightly askew, soothe my soul and bring happy memories to mind.
This level of familiarity is vacated when I am in a new place. And while the novelty of a different shower, coffee set up, working the TV and adjusting to pillows and chairs is an effective way of stimulating my aging brain, when I am depleted emotionally and psychologically, and when I am at my core threatened with extinction, that novelty drops to the bottom of the list and I am left even more fatigued.
I have seen this emptiness in the eyes of people whose homes have been incinerated in the fires. I have seen this surrender in the drooping shoulders of people who have stood in long lines only to be told the forms they need to fill out to start their lives over are located in another line, even longer. I have seen this in the shuffling strides of those who are homeless and now without work or purpose.
Where can I go when home is no longer safe? I am not the first to ask this question. Whether it be women who are physically and economically tied to partners who make their lives unsafe or whether it is the increasing numbers of people who are becoming climate refugees, where do we go when our homes are no longer there?
In my reviewing these last few days, I came to the conclusion that I was seeking sanctuary. I was seeking a place of refuge, a place where I would find peace and tranquility. An experience where I would feel connection and belonging. For me, this can be found in nature or in the company of others. What truly brought me “home,” was not just returning to my house, but lingering in conversation with friends who reached out to see if I was OK.
I find myself wondering whether my time here in California is spent. I have lived here for 41 years – the longest I have lived in any one state. While I can go through a checklist of places that have lower environmental risk and are possibly more economically advantageous as I approach retirement, I now realize that what is essential is that I am able to connect with and build community. And that is a daunting prospect in these current times.
I understand better why some people stay behind to protect their property. I have more compassion for those who return and put themselves in what are irrationally unsafe environments. It is hard to leave a place that brings such comfort from the unknown. What all this has taught me is that I am going to have to leave sometime. It will either be by my own choice or because I am forced to leave. The challenge is knowing when to exercise my options.
Mary L. Flett, PhD, is an author, clinical psychologist and nationally recognized speaker on aging. She has just published “Aging with Finesse,” a three-book series of short essays exploring valuing ourselves as elders, connecting with others, and acquiring essential skills for aging well and aging better. She is the Executive Director of the Center for Aging and Values and is launching Five Pillars of Aging, where she will be offering online seminars on aging.
I will leave my friend’s name out, just in case she is reading this blog, but I think her reaction is one that many people have because they are not aware of the range of housing options for older adults.
There isn’t one large leap from living independently in one’s home to needing assisted living — there are numerous steps and choices.
Housing needs are not clear-cut nor consistent. There are a continuum of needs, finances, preferences and opportunities.
Housing is likely the biggest investment most of us will ever make — our home becomes a place we can call our sanctuary, and build memories. As such, the “where” and “how” we live are among the most important decisions we make. And these decisions cannot — or should not — be made suddenly or in a moment of crisis.
According to statistics, more than 23% of NJ’s total population is over 60 — and by the year 2030, all Baby Boomers will be of retirement age. Additionally, studies show that the majority of adults 50+ wish to remain in their homes and/or communities as long as possible, with a sense of independence and connection.
We need to spend time educating ourselves about available options, planning in advance for adapting our current home, exploring our next home and preparing for change.
For all of these reasons, we are hosting the NJAAW Housing Series, bringing together experts in the realm of NJ housing to explore options at each stage and need, to help you make informed decisions for yourself or for the older adults in your life.
The series takes place online on consecutive Wednesdays in February at 4 p.m.
Speakers will explain strategies to help you stay in your homes with modifications and built design. They will also discuss options for getting help in the home, downsizing and when assisted and supportive living becomes necessary.
You’ll find more information at njaaw.org/events. Please register once for Zoom links to all four sessions Those who register will also have on-demand access to session recordings.
As we wind up 2021, I just want to take a moment to say I’m proud of you, New Jersey! Now, with all the jokes made about the great Garden State, you might not be used to the compliment, but here is why I am proud of our older residents, in particular.
New Jersey was hit hard early in the pandemic and suffered tremendous loss of life.
When we started 2021, we were on the edge of our seats waiting for the COVID vaccine and a return to normalcy. It was a frantic rollout but once the supply caught up with demand, the older residents in New Jersey led the way in getting vaccinated.
December 15 is the anniversary of the first COVID-19 vaccinations being administered in the state of New Jersey. According to multiple reports, Garden State residents age 65 and over are among the highest vaccinated group in the country. New Jersey is leading the nation in fighting COVID.
Now, I am not talking about politics or the misinformation that is affecting personal decisions on getting vaccinated. I am talking about the facts: Our fellow New Jerseyans over the age of 65 remember growing up in a time before vaccines. They can remember when polio, measles and other contagious diseases would shut down schools and swimming pools, and put communities on edge. They had lived through this before.
We hear the term “unprecedented” used in discussions about COVID, the vaccines and mandates. Yes – this is unprecedented; the last time we saw a health crisis of this magnitude, a true pandemic, was over 100 years ago.
Living through the flu epidemic of 1918
There are a handful of people who lived through the influenza epidemic of 1918, which spread worldwide before we had airplanes, cars and the social interactions we were so accustomed to until COVID arrived. Many of the medical advances we take for granted were not developed – vaccines were in their infancy and penicillin was still 10 years away.
No corner of the globe was left unaffected and the similarities of the 1918 pandemic and COVID-19 are surprising, considering the century of medical progress that has passed in between.
A few years ago, I made a documentary with SOMA (South Orange Maplewood) Two Towns for All Ages, in which we asked older residents about their memories of growing up before vaccines. Stories included children being sent away to family members in the countryside for the summer, to avoid polio. One woman recalled a relative who returned home from World War II a hero, only to succumb to polio a few weeks thereafter. Another witnessed diseases first-hand as a young nurse. Their honest recollections come to my mind every time I hear updates on vaccination rates.
We have come a long way and I am truly proud that people who can remember the time without vaccines took the lead in getting them to not only protect themselves but also others.
Vaccination rates for people 65+: nationwide vs. NJ
As of this writing, the national vaccination rate among adults age 65+ is 90+% ; in NJ it is over 98% with some communities reporting all residents over age 65 are vaccinated.
In addition, vaccination rates for BIPOC (Black, Indigenous and People of Color) NJ residents are above the national average, elevating protection in communities that have been hit hardest by this virus. (Source: NJ Department of Health, USAfacts.org and CDC.gov)
So, well done NJ! Once again, our older neighbors have proven that they are leaders and have so much to teach the rest of us.
I thank all of the people who drew on their life experiences and memories in making their health care decision to get the COVD vaccine. May we all look to your example.
To see the SOMA Two Towns for All Ages documentary “A Time Before Vaccines,” click here. This oral history shares the personal memories of SOMA residents growing up in a time before vaccines, and how now preventable diseases like polio, diphtheria and measles affected their lives.
Thanksgiving has always been my favorite holiday as far back as I can remember. There was something magical about Mom, Dad, my brother and me piling into the family car on Thanksgiving eve and driving from our NJ home to upstate NY.
We’d always spend “turkey day” and a few days thereafter with Dad’s side of the family. Inevitably, it would also snow while we were there — and I love snow!
Throughout the years, the Big Event was either hosted by Dad’s parents, his older brother and family or his younger brother and family.
My first cousins were fairly close in age to my brother and me, and we enjoyed spending time together. And we were loud! This made for some raucous times at the proverbial “kids’ table.”
Our celebrations were rich with traditions. Great Uncle Steve, sipping his Johnny Walker Black, would tell stories of his travels abroad with the military or with Great Aunt Kate, who would often chime in. If a piano were nearby, Grandpa would play and sing. And without fail, you’d hear Grandma exclaim, “Oh, George!” multiple times, admonishing her husband for yet another groan-worthy joke or story.
Recaps of times gone by and peals of laughter were de rigueur at these gatherings. And the food! I’m blessed to have relatives who were phenomenal cooks and bakers.
My fondest memories are from Thanksgivings of later years, spent in the small-but-cozy Utica, NY, home of Dad’s youngest brother and family: my Uncle Paul, Aunt Marie, their four children, and Aunt Marie’s Mom, “Gram.”
Turkey and Trimmings and Pie — Oh My!
Second cousins eventually joined the family and the kids’ table on their enclosed porch got even tighter! However, there always seemed to be enough room — and endless amounts of fantastic food.
I always marveled at how my Aunt Marie managed to have the gigantic turkey (there could be upwards of 30 people) plus all the fixings and other goodies ready at the same time. She had limited space to do this since family members around the “adults’ table” took up most of the room in her kitchen and counter space was at a premium!
Desserts were a bounty of heavenly homemade pies as well as Italian cookies and pastries from a favorite nearby bakery.
The morning after Thanksgiving, we carried on perhaps the greatest long-standing tradition of all: leftover pie for breakfast.
Sadly, we stopped heading upstate for “turkey day” decades ago as families scattered. Many of our elder relatives had also passed on.
As much as my heart aches for “the good old days” — spending the happiest Thanksgivings with Dad’s family and being with those who now are gone or a distance away — I am thankful that I have plenty of fond memories and photos to lift my spirits.
This Thanksgiving, may your heart be filled with gratitude and your stomachs, with delicious food.
And if you’re also unable to spend time with those you love, whether they’re near or far or no longer walking the earth, may your memories be as sweet as pie.
Speaking of pie…I do hope you’ll join me and my relatives in enjoying a slice or two for breakfast the morning after!
Sue Burghard Brooks (pictured above, far right) is entering her third year as NJAAW’s Communications Manager and is also Executive Producer of the nonprofit’s monthly “Aging Insights” TV program. She confesses that her favorite Thanksgiving pie is mincemeat — though growing up, she never ate it because her older cousin Ed (pictured front, holding his youngest sister, De) said that it was made of monkey meat!
Guest blog by Charles Clarkson, Esq., Project Director, Senior Medicare Patrol of New Jersey
On March 13, 2020, a national health emergency was declared due to the coronavirus pandemic. After many years of running the Senior Medicare Patrol of New Jersey (SMP), I knew it was only a matter of time before we starting seeing SCAMS related to the health emergency. Fraudsters are always looking for ways to scam people, and the COVID-19 public health emergency has been no exception. Initially, fraudsters promoted false cures, sold phony personal protective equipment, given people illegitimate COVID tests and billed Medicare for sham tests and treatments. Now, they are targeting vaccines.
The goals of the fraudsters are very simple: to obtain your information, which they can use to steal your personal and/or medical identity, or to outright steal your money. The SMP has seen a number of vaccine scams. The more you know about these scams the more likely it is you will not fall victim to them.
Head-of-the-line Vaccine Scams
Scammers call and say you can get your vaccine early by providing your Medicare number or other personal information. They may ask for payment upfront and/or insurance information in order to be placed on a priority waiting list for a vaccine you may never receive.
Don’t fall for it. You cannot pay to get in line for a vaccine.
Survey Vaccine Scams
You have gotten your vaccine. You then get an email asking you to complete a health survey. It looks legitimate and has logos and telephone numbers that appear to be genuine. You want to be helpful because you are grateful you were able to get the vaccine. Some of these surveys are also offering money or other incentives to entice you to participate in the survey. The messages may also claim to be urgent, giving a timeframe of expiration to get you to click on their deceptive link to gain personal information.
Don’t fall for it. A vaccine survey offering you an incentive or stating a sense of urgency to complete is a red flag. You should double-check logos and phone numbers and hover over links to see if they are long and suspicious. Don’t click on them.
Vaccine Trial Scams
There are numerous clinical research trials in the race to develop additional COVID-19 vaccines, treatments and cures. Legitimate clinical trials may offer payments to participants under well-defined legal guidelines. However, career criminals know the offer of a paid clinical trial is also an opportunity for financial identity theft.
Scammers are setting up fake websites offering to sell vaccines or vaccine kits. Some are imitating legitimate pharmaceutical manufacturers. In some cases, scammers were asking for payment for vaccines and/or kits via a credit card and sending payment to a specific credit union.
Don’t fall for it. You can’t buy a vaccine.
For More Information About Vaccine Scams Affecting Older Adults
If you think you have been a victim of Medicare fraud, errors, or abuse, contact the Senior Medicare Patrol of New Jersey at 1-732-777-1940 or call our hotline at 1-877-SMP-4359 [1-877-767-4395]. You can also visit our website.
If you have questions related to Medicare billing for COVID-19 vaccines, call 1-800-Medicare [1-800-633-4227] or visit Medicare.
Charles Clarkson, Esq., has been the Project Director of the Senior Medicare Patrol of New Jersey, under the auspices of the Jewish Family Services of Middlesex County, since 2005. The Senior Medicare Patrol of New Jersey is a federally funded program of the U.S. Administration for Community Living and part of the national Senior Medicare Patrol project. There is a Senior Medicare Patrol in every state, including the District of Columbia, Puerto Rico, Guam and the U.S. Virgins Islands. The SMP of New Jersey is responsible for teaching Medicare recipients in the state to become better healthcare consumers. As part of this effort, seniors are provided with information to prevent them from becoming victims of fraud, waste and abuse in the Medicare program. The SMP program also assists beneficiaries in reviewing suspected Medicare fraud and can act as an advocate to assist beneficiaries in fighting Medicare fraud, waste and abuse.
Clarkson is a New York attorney who for many years was Vice President, Deputy Counsel and Corporate Secretary of TLC Beatrice International Holdings, Inc., a multi-billion, international food company.
Excerpt from a speech by Cathy Rowe, DrPH, NJAAW’s new Executive Director
For the last four to five years, I have been deeply involved in age-friendly efforts and communities, and as you have heard in recent weeks — and from some of our [conference] speakers — NJ has committed to becoming an age-friendly state. So, this is an exciting time with a lot of opportunities for all of us in the field of aging to make change where needed, keep all the best of what we do and attempt things we never thought possible before. Now is the time to reach high.
When [NJ’s Director of the Division of Aging Services (DoAS)] Louise Rush told us that 23+% of NJ residents were over age 60, even I was surprised. That’s a lot! It really is a lot.
We have known that the Baby Boomers — the bubble born post-WW2 through 1968 — were the largest population group ever seen in the US, and we have watched for 60 years as they moved through the schools systems, the workforce, started their families and now enter retirement. We built schools for them, colleges, highways and other infrastructure to accommodate this population growth, but we are still not fully prepared for their next stage of life.
Living longer; prepping for the future
Part of this is because when they were born, the average life expectancy was still under 70 years. Now, a child born today may easily see their 100th birthday. That is a big change and a rapid change. Nobody building new schools to accommodate an influx of students in 1960 predicted that those same children would live as long and as well as they are now.
There is a lot to do to prepare. Coming out of COVID, as we rebuild and rebound, we need to keep the lessons we learned and use them for long-term planning, to shape policy and make improvements. No problem that any of us were working on before COVID was solved — most were accentuated. Many new, or rather, unrecognized challenges, were brought to the forefront. And we saw some very creative solutions.
Aging is actually one of the very few things we all have in common. My background is in public health, and I was once asked how public health fit into healthy aging. I responded that healthy aging is the goal of public health. All efforts, research, programs — whether long-term or in quick response to something like a pandemic — are with the goal to help people live long, healthy lives as individuals and as a population.
Not just aging — aging well
So, the question we face is: How do we age well — as individuals, as communities and as a state?
At NJAAW, our role and goals are aligned with our emerging from COVID, the review of the state plan for older adults, and the age-friendly efforts. For 10 years, NJAAW has provided Aging Insights, our award-winning TV program, covering topics that range from health, pandemics to personal finances and just about everything in between. We will continue Aging Insights as well as holding webinars that have provided interactive sessions with colleagues in the field who have found unique ways to approach aging issues in their communities.
Sharing, educating, advocating
And based on the response to our conference’s networking session, and the very active Q&A for presenters, we will offer more opportunities to bring you together for discussions and idea-sharing — one small benefit of the last year is that we can now connect so easily online. Meeting online breaks down the many silos that might block our natural interaction — either by service area or geography.
This is NJ and with over 500 municipalities doing things 500 different ways, it is difficult to see what another community is doing and find ways to implement it for your town or program or agency. We want to help in the sharing of ideas, lessons and successes you all have had in your work.
As NJ works towards becoming an age-friendly state, we will continue the education and advocacy we have done for the past 23 years. We will increase our focus on policy and joining the discussion on age-friendly efforts and the changing demographics of our state.
2030, that looming year we in NJ and many states expect to see the number of 60+ year old residents outnumber the number of students in the classrooms, is not far away.
We will highlight issues of importance with
Academic research and
The experience of local efforts bubbling up and state efforts going down
Where do we meet in the middle?
Your plans for aging well?
I asked Louise Rush and members of the breakout groups what their plans are for aging well — and I am going to keep asking so everybody, start thinking. We are all professionals here, working to help people age well. Whether social worker, housing, health care, recreation, mental health or transportation — we are working now to not only meet needs but to make life better for older New Jerseyans.
But as the flight crew always tells us, “Put on your own oxygen mask first.” Louise Rush said age 0 – 60 goes fast. Age 60 – 90 might slow down for some as you find new time in retirement or might speed up more with additional family, responsibilities, or new careers and activities.
So, do not just think of what needs to be done right now, coming out of COVID, or for the next year, or the next inspection or budget cycle. Think of what YOU can do long term and what WE can do together. What do you personally want for your aging plan? Where do you want to live? Are you financially prepared?
Whether you are new to the field, mid-career or counting the weeks until you retire, envision where and how you want to live and what you will need. Now go do it!
The time is now
The timing for coming out of COVID actually is good, if there could ever be a “good time” or anything good to come from a pandemic. What I mean by that is that we are re-emerging and rebuilding at the exact time other significant changes are about to be made. We are launching statewide efforts to make NJ an age-friendly state just as we are looking at the lessons we learned from COVID.
We saw the devastating fragility of some of our residents who succumbed to this disease. We saw that socioeconomic status, including race and income, had a significant impact on whether someone caught COVID and their ability to recover.
Lessons to be learned
More than ever before, we came further in the last year in recognizing racial inequities, which become more pronounced as we age. We saw some communities embrace technology while others were left further behind. We learned that we do not know enough about our older residents who live in their own homes, who are not in any programs or receiving benefits. What do all of these have in common? They are lessons we learned and data points we can use going forward.
At NJAAW we are going to keep doing what we do well — convening, educating and advocating for older residents. To be as effective as possible at this important time of change, we will examine data more carefully to identify needs and to help shape policy. Look for the data highlights we will include in our newsletter and other communications.
Data = direction
From my time in academia, I learned that it is only with good data that we can help shape good policy and then implement that policy as effectively and efficiently as possible. I am thrilled to have supportive and dedicated people in our statehouse, including Assemblywoman Valerie Vainieri Huttle and the members of the Aging and Senior Services Committee in the Assembly, and Director Rush shaping our next steps in policy and programs. At NJAAW we will share the data and discussions with you and will advocate for policy and the funding necessary to make NJ a state where we can all age well.
About Dr. Rowe
Cathy Rowe, DrPH, was named Executive Director of NJ Advocates for Aging Well in May, 2021. Most recently, Dr. Rowe served as Coordinator for SOMA (South Orange/Maplewood): Two Towns for All Ages, a grant-funded healthy aging initiative in a community with more than 6,000 residents over 60. This cutting-edge collaboration, based on the World Health Organization’s Domains of Healthy Aging, focuses on developing programs to address economic and infrastructure needs for an age-friendly community.
Dr. Rowe has spoken extensively on aging issues at conferences and symposia locally and globally and is an expert in establishing age-friendly communities. In 2020, the National Association of Area Agencies on Aging presented her with a “Best Practices for Socially Engaging Older Adults Award” for the “Repair Café” she established — the first of its kind in NJ. An inter-generational event, the cafe brings together people of all ages and levels of expertise to repair and save treasured items. This also helps to keep such items out of landfills.
Dr. Rowe serves on the steering committee for Impact 100 Essex and is a mentor for the Juvenile Diabetes Research Foundation. Previously, she was a Board member for the Interfaith Hospital Network.
Dr. Rowe earned her DrPH in Health Policy and Management from Columbia University, where she received a Fellowship in Public Policy. Her BA in Economics is from Bates College.
I remember growing up and watching my aging grandmother sit by her living room window, looking out, waiting for nothing in particular to happen – just watching her life pass her by.
That sad, helpless memory always stayed with me, but I was never able to take that sadness and transform it something productive, something that could help people.
Then, 20 years ago, I became involved with the New Jersey Advocates for Aging Well (formerly New Jersey Foundation for Aging).
I joined the organization and first served on an Advisory Council. I then ascended to the Board of Trustees, became its Chair for six years and after my term as Chair expired, I am serving as a Board member again.
Realizing a Wish
I wanted to do something that would make the lives of older adults more meaningful and enriched, so more grandmothers (and grandfathers) would not have to stare out of apartment windows. At the time, then-NJFA, with its emphasis/focus on facilitating seniors to live independently, actively and in their community, gave me the opportunity to realize this wish.
To me, it is the accomplishments and actualization of our vision that is most valuable, as it shows me that we aremaking a difference. Coupled with this is the engagement and dedication of our Board members, who seek to bring those things to life. This is all done in concert with the extremely hard work and devotion of our staff, who move our agenda forward every day. This is why this change in our name, New Jersey Advocates for Aging Well, more accurately describes who we are and what we do.
We tend to think that “getting older” is something that is going to happen in the future. However, it is happening every day, and educating yourself about what you and your loved ones are going to face as you live and age in New Jersey, is critical.
Everyone has a right to age well in the community of their choice. As the New Jersey Advocates for Aging Well, we will continue to provide leadership in public policy and education and work diligently to ensure that all New Jersey residents can do just that.
Included in NJAAW’s name change is an updated logo and this new website, which is a portal packed with reliable information on programs and services available in New Jersey to help you live life to the fullest.
NJAAW will present educational forums and its Annual Conference (online June 3 and 4) offering development opportunities and best practices for professionals entrusted with caring for seniors. Our award-winning monthly TV talk show, “Aging Insights,” features local and national experts and connects seniors, their families and caregivers to community-based services and resources. The program can be viewed on our YouTube channel at youtube.com/user/njaaw/ (where you can subscribe and get notified of upcoming topics), here on our website and more than 70 public-access TV channels throughout our state.
This is an historic moment! Nearly 23 years have passed since we were founded. Now, in 2021, we have a new name, a new logo, a new website. Our mission, however, never changes!
New Jersey Advocates for Aging Well. Join me in celebrating and spreading the word!
Mark Tabakman (MTabakman@foxrothschild.com) is a Partner, Labor & Employment Department, at Fox Rothschild, LLP, where he has practiced since 1987. He is conversant in all aspects of employment law and has expertise in wage-hour and overtime law, including defense of employers in numerous DOL audits and wage lawsuits.
You – or someone you care about – are older, and having trouble reading print. The simple act of scanning a printed page visually is now laborious and slow-going. It’s time to get that checked out with the eye doctor.
After running some tests, the doctor’s declaration is all-too-familiar and goes something like this: “You have age-related macular degeneration, which is the #1 cause of vision loss in people over 60 in the U.S. THERE’S NOTHING I CAN DO. I AM SORRY.”
Your heart sinks, the floor figuratively falls out from beneath you. Rage, sorrow, grief…all those stages described by Kubler-Ross run through your mind, seemingly at once.
Blindness is one of the lowest-incidence disabilities in the general population, so it’s likely you may not know or have never met a blind person. That doctor must be right; there’s no magic pill or surgery to fix you. Depending on the kind of eye condition you have there may be vitamin therapy or periodic injections into the eye to stave off the loss of more vision. It’s likely, though, that what you have lost will remain so.
Before we continue here, a disclaimer: I am not a medical professional and this blog is not intended to dispense medical advice. Know, however, that I have been part of the scenario just described and have personally spent too many years being angry at my diagnosis of juvenile macular degeneration. My hope is that my experience may save you lots of time in the adjustment process. And while you might have been told there is nothing to be done, that is not entirely true.
There are two commonly-held ways that disability (such as blindness) is perceived. One is the medical model: Your vision is diminishing and that eye doc cannot bring it back. That may be the case. Therefore, in some circles, you and your condition represent failure to a medical professional who has been trained to “fix” what is “wrong” with patients. Your eye condition cannot be brought back to 20/20 or whatever your best vision was. So, in a matter of speaking, there is, technically, nothing that medically or surgically can be done.
There is another way, however, that disability is viewed by those of us who have one (or more). Having a disability is just another way to be – a part of the grand spectrum of human diversity. And a disability needs to be accommodated so that a full life can be had, if that is what the person with a disability wants. Many laws guarantee this, including the 1991 Americans with Disabilities Act, granting equal access to public places, documents and the like as a civil right.
Yes, You Can…
After your diagnosis, the next step is YOUR choice. You CAN have a great life, continue many of the activities that brought you joy and satisfaction before your diagnosis. Your part is the willingness to try a new way to achieve the same ends.
For example, you enjoy reading the daily paper, adore certain magazines and relish best-sellers. What now? You can’t see the print sufficiently to read it fluently and comfortably. Know that the digital age brings with it opportunities to get the same content by downloading them or playing CD audiobooks and periodicals. You also can use assistive technology – software that magnifies and changes on-screen print fonts and colors or reads the screen content aloud. These are just some of the examples of what is possible. Do you love to hike, take bike trips, ski or travel around the world? I’ve done all of that with my diminishing sight.
Yes, you’re going to need some new skills, tools and techniques, not to mention emotional support from other people who already have or are walking the same path as you.
First, have your doctor tell you if you meet the parameters for “legal blindness” (there is, as far as I know, no illegal blindness!), which is that your best vision, with correction, is 20/200. This means that you see at 20 feet what a person without vision loss sees at 200 feet. (Note that I don’t use the term “normal” here; in my life, normal is just a setting on a washing machine, not a classification of the way anyone sees.)
The other element for the classification of legal blindness is a visual radius of 20 degrees or less. This relates to the radius of what your eye can see.
Most people who meet the criteria for legal blindness do see something. Blindness is a spectrum of the range of one’s functional vision. Only 10 to 15 percent of us blind folks see nothing at all.
NJ Commission for the Blind and Visually Impaired
Legal blindness entitles you to services from your state’s agency dedicated to people who are blind or have low vision. So next, contact the NJ Commission for the Blind and Visually Impaired (CBVI), which serves people throughout the lifespan. There are offices in Newark, Freehold and Cherry Hill. Their website is www.state.nj.us/humanservices/cbvi/. Call them at 973-648-3333 or toll-free at 1-877-685-8878 and arrange for what is known as an “intake interview.” A caseworker will collect the necessary information and determine whether you need training to continue a job you felt you had to leave because of vision loss, or perhaps you need training for a whole new career, or maybe how to live the life you want.
Have no second thoughts about requesting services from CBVI – you pay taxes and this service is absolutely there for us. Once you become a client, you can get aids and appliances of all sorts, FOR FREE, to make your life easier. A rehabilitation teacher may even come to your home (once the pandemic is over) to help label your stove thermostat, washing machine and the like to make them simpler to use by touch rather than sight.
There also are support groups around the state for people experiencing vision loss. Find one local to you by contacting Susan Vanino, the social worker at CBVI who coordinates the program, at 973-648-2821. You can also email firstname.lastname@example.org.
Support groups can be so helpful. Their members also are experiencing vision loss and some of the best tricks of the trade, so to speak, come from others who are a few steps ahead on the path. (Many groups continue to meet by conference call, Zoom or similar platforms to keep everyone safe and healthy.)
National Federation of the Blind of NJ
One of the best resources available is the National Federation of the Blind of New Jersey (NFBNJ), part of the National Federation of the Blind based in Baltimore. Check them out at www.nfbnj.org. I proudly serve on their Board. Be sure to look at the Senior Division at www.nfbnj.org/chapters-and-divisions/seniors/. This group meets by phone at 7 p.m. on the third Monday of every month. Annual dues are $5.
The 2020 NFBNJ State Convention, taking place Nov. 18 to 21, is virtual this year, and I highly recommend it. It’s free but you must register in advance at www.nfbnj.org/state-convention/. You’ll hear from engaging and informative speakers and learn about the latest in technology, including Smartphones that read the screen content aloud, dial the phone by voice and even coach you on taking a well-framed photo with its camera.
This brief blog easily could become a book so I will stop here. Remember, whether you are diagnosed with macular degeneration or a similar cause of vision loss, the choice of how you will respond is up to you. Be willing to achieve the same ends by using different means. It really works!
I’m happy to answer any questions or receive your comments about this blog. Please leave them here or if you’d prefer, email them to NJFA Communications Manager Sue Brooks at email@example.com. Include your contact information and I’ll reply.
Annemarie Cooke began losing central vision in early adulthood. She has Stargart’s Maculopathy, a congenital form of macular degeneration. A graduate of Douglass College of Rutgers University, she’s a former award-winning investigative and feature reporter for the Daily Home News (now the Home News Tribune). She later joined Recording for the Blind & Dyslexic (now Learning Ally), where her advocacy work often took her to Washington, D.C. She notes that the advances in assistive technology, combined with the wisdom and fellowship found in several support groups and the National Federation of the Blind of New Jersey, have helped her grow into a confident mentor in a state transition program for blind and visually impaired NJ high school students. Annemarie and her husband are semi-retired and live in a 55+ community in Burlington County, NJ, where she leads a support group for seniors with vision loss.
Mornings on the golf course. Weekends with the grandkids. Vacations to dreamed-of destinations.
These are the visions of “successful aging” in many people’s minds, reflections of the one-dimensional view of growing old that is all too pervasive in our culture.
Not that those pretty images of retirement life aren’t experiences that people should desire. But without taking a deeper look at all the potential challenges and opportunities of growing older, many individuals will fail to anticipate later-in-life needs and desires.
In its advocacy work, the New Jersey Foundation for Aging routinely seeks to widen the lens that society trains on the lives and livelihoods of older adults, and the organization’s annual conference this year succeeded in doing just that.
Titled “2020 Vision for Successful Aging,” the conference, held virtually on Aug. 13 and 14, featured presentations on how aging intersects with a range of other policy issues from climate change to LGBTQ rights to immigration policies.
The conference also sought to open attendees’ eyes to the ways in which ageism is so widely normalized and internalized that it can often lead to us making uninformed individual and societal decisions that limit older adults’ choices in later years.
In a keynote address, Cynthia Hutchins, director of financial gerontology for Bank of America Merrill, said people shouldn’t avoid thinking about uncomfortable questions such as how long they might live and whether they will need some form of caregiving at some point.
“Longevity has changed the way we plan for our health and our health-care needs,” Hutchins said.
Previous generations didn’t envision living decades in retirement, but Baby Boomers and the generations that come after them will need to have a better understanding of such things as the limits of Medicare, the different options for long-term care, and how the financial and lifestyle choices they make early on can affect future health and happiness, Hutchins said.
In her presentation, Hutchins pointed out that, although one’s future health might be an unknown, there are useful projections individuals need to be aware of, such as that out-of-pocket health care costs between the ages of 65 and 80 can equal $114,000, and then grow to $247,000 by age 90 and $458,000 by age 100.
Figures like these might seem unbelievable to the average individual, but failing to adequately discuss and plan for future scenarios is what often leads to individuals having inadequate plans, and our government institutions having inadequate policies for the aging of the population.
At the root of our society’s unpreparedness for aging is often ageism, which includes the “prejudice against our future selves” that many of us possess.
Ageism was a focus of several workshops at the two-day conference, some of which examined how it can evolve into elder abuse or translate into a lack of advocacy on key issues that older adults and their advocates should be speaking about more often.
CLIMATE CHANGE + AGING
Climate change is foremost among those issues. Often portrayed as an issue of more concern to younger people worried about the future, what’s often overlooked is the fact that older people are the ones who tend to suffer the most harm from the severe storms and climbing temperatures that are already the result of our warming planet.
Jeanne Herb of the New Jersey Climate Change Resource Center at Rutgers Universityshared data showing that older people are at more risk of heat-related hospitalizations and more likely to have chronic conditions exacerbated by severe weather and the power outages and service interruptions that can result from them.
Similarly, older adults and their advocates need to be aware of how immigrants and people in the LGBTQ community are subject to more discrimination and barriers to housing and supportive services as they age, other panelists at the conference argued.
In addition, the coronavirus pandemic has brought to light the way ageism, and bias toward disenfranchised groups, can lead to alarming disparities in disease exposure and treatment outcomes and to the many gaps and weaknesses in New Jersey’s long-term care systems, many speakers pointed out.
Organizers of the conference hoped that it would serve as a call to action, and ideas were shared on how to combat ageism with intergenerational programming and through the arts.
The study entailed recruiting 72 individuals – ranging in age from 20 to 82 – to perform in skits that reflected age stereotypes. Afterward, participants were surveyed on whether the performances had altered their perceptions of aging and generational differences.
As director of Lifelong Montclair, a now-five-year-old age-friendly community initiative, York said she has come to “recognize the need for culture change as a foundational element of age-friendly efforts.
“As more people understand the scope and value of our work on culture change, I believe our work will be that much more significant, and those battles we face along the way will be that much easier,” York said.
Julia Stoumbos, director of aging-in-place programs for The Henry & Marilyn Taub Foundation, said the NJFA conference provided many useful insights into how the leaders of age-friendly communities can help change views of aging, and also the steps that community leaders take to support the goal of aging in comfort, dignity, and safety.
“Often, the approach that communities take in addressing the needs of older adults is compartmentalized. There’s a big emphasis on leisure and recreation – planning Zumba classes and bus trips to Atlantic City. There’s also a tendency to medicalize old age, with programs focused on how to combat it or treat it like a disease.” ~ Julia Stoumbos, director of aging-in-place programs for The Henry & Marilyn Taub Foundation
“Often, the approach that communities take in addressing the needs of older adults is compartmentalized,” Stoumbos said. “There’s a big emphasis on leisure and recreation – planning Zumba classes and bus trips to Atlantic City. There’s also a tendency to medicalize old age, with programs focused on how to combat it or treat it like a disease.
“Those narrow approaches can sometimes lead to older adults being treated as if they are separate from the rest of the community, as if they are less invested in issues that affect all people at all ages,” Stoumbos said.
“Older adults have no less of a stake in the major issues of the day. They need to be empowered to stay engaged on these subjects, and communities need to make sure they are bringing the generations together in conversations about the weighty issues that affect quality-of-life for all.”
The age-friendly movement was first envisioned by the World Health Organization in 2005 as a way to find local strategies to prepare for the global challenges and opportunities of an aging population. The North Jersey Alliance of Age-Friendly Communitiesis supported by The Henry & Marilyn Taub Foundation and the Grotta Fund for Senior Care. Together those foundations are funding age-friendly initiatives in 16 communities in five counties – Bergen, Essex, Morris, Passaic and Union – which together have a population of more than a half-million people. The alliance also works in partnership with NJFA, AARP New Jersey, New Jersey Future and Rutgers University.