I remember growing up and watching my aging grandmother sit by her living room window, looking out, waiting for nothing in particular to happen – just watching her life pass her by.
That sad, helpless memory always stayed with me, but I was never able to take that sadness and transform it something productive, something that could help people.
Then, 20 years ago, I became involved with the New Jersey Advocates for Aging Well (formerly New Jersey Foundation for Aging).
I joined the organization and first served on an Advisory Council. I then ascended to the Board of Trustees, became its Chair for six years and after my term as Chair expired, I am serving as a Board member again.
Realizing a Wish
I wanted to do something that would make the lives of older adults more meaningful and enriched, so more grandmothers (and grandfathers) would not have to stare out of apartment windows. At the time, then-NJFA, with its emphasis/focus on facilitating seniors to live independently, actively and in their community, gave me the opportunity to realize this wish.
To me, it is the accomplishments and actualization of our vision that is most valuable, as it shows me that we aremaking a difference. Coupled with this is the engagement and dedication of our Board members, who seek to bring those things to life. This is all done in concert with the extremely hard work and devotion of our staff, who move our agenda forward every day. This is why this change in our name, New Jersey Advocates for Aging Well, more accurately describes who we are and what we do.
We tend to think that “getting older” is something that is going to happen in the future. However, it is happening every day, and educating yourself about what you and your loved ones are going to face as you live and age in New Jersey, is critical.
Everyone has a right to age well in the community of their choice. As the New Jersey Advocates for Aging Well, we will continue to provide leadership in public policy and education and work diligently to ensure that all New Jersey residents can do just that.
Included in NJAAW’s name change is an updated logo and this new website, which is a portal packed with reliable information on programs and services available in New Jersey to help you live life to the fullest.
NJAAW will present educational forums and its Annual Conference (online June 3 and 4) offering development opportunities and best practices for professionals entrusted with caring for seniors. Our award-winning monthly TV talk show, “Aging Insights,” features local and national experts and connects seniors, their families and caregivers to community-based services and resources. The program can be viewed on our YouTube channel at youtube.com/user/njaaw/ (where you can subscribe and get notified of upcoming topics), here on our website and more than 70 public-access TV channels throughout our state.
This is an historic moment! Nearly 23 years have passed since we were founded. Now, in 2021, we have a new name, a new logo, a new website. Our mission, however, never changes!
New Jersey Advocates for Aging Well. Join me in celebrating and spreading the word!
Mark Tabakman (MTabakman@foxrothschild.com) is a Partner, Labor & Employment Department, at Fox Rothschild, LLP, where he has practiced since 1987. He is conversant in all aspects of employment law and has expertise in wage-hour and overtime law, including defense of employers in numerous DOL audits and wage lawsuits.
The onset of the pandemic hit NJ’s Foster Grandparent Program hard. The novel coronavirus was particularly concerning to our program because according to public health officials, two of the most vulnerable groups at risk were seniors aged 65 and older and school-age children. Unfortunately, those also happen to be the core segments of our program’s demographics…
New Jersey’s Foster Grandparent Program (NJ/FGP), part of AmeriCorps Seniors, provides low-income senior residents, ages 55 and up, with the opportunity to work one-on-one as mentors and role models to children with special or exceptional needs.
Volunteers, who must be retired and/or receiving Social Security, do this work in classrooms or institutionalized settings throughout the state. Income eligibility (200% under the federal poverty line), criminal history and background checks are required for volunteers to serve, and they receive a tax-free stipend of $3 an hour. Travel reimbursement, free breakfast and lunch provisions, supplemental accident and liability insurance and an annual award-recognition event are some of the program benefits.
Foster Grandparents support schools and community needs related to children where traditional services are not available, such as encouraging socialization, modeling appropriate behaviors and skills, assisting in the development of motor and learning skills, tutoring, listening, talking, singing, walking and reading.
In March, the new reality of pandemic-related lockdowns, social distancing and limits on travel and gatherings were put in place as safety measures by Gov. Murphy’s executive orders. Such measures kept our Foster Grandparent volunteers at home and off duty.
Major fears for our volunteers escalated because many were afraid or not able to leave their homes, even to shop for food. And a few of our volunteers suffer from food insecurities and isolation.
HELP AND KEEPING CONNECTED
My colleagues and I made weekly phone checks to our volunteers, home visits to drop off food to those in need and ran errands as a courtesy to those who expressed a need. We also completed monthly conference calls to keep all of our volunteers connected to the program and each other.
Fortunately, the national office of AmeriCorps Seniors has made it possible to continue monthly stipends during this period by providing a COVID-19 allowance until December 31, 2020. Many of our volunteers have come to rely on these stipends.
BACK TO SERVICE
Now that some of the Governor’s executive orders, COVID curfews and closure restrictions are lifting, and some schools have re-opened, we are working to transition our volunteers back into service. A number of our volunteers remain concerned about the potential risks that COVID-19 may have on their health, and we’re concerned for them as well. Nonetheless, the majority cannot wait to go back to their sites. They love and miss working with the children.
Our pathway back to service includes practicing social distancing, using required personal protective equipment (PPE) and taking on new permissible service roles.
COVID-19 thrusted our senior volunteers into the virtual world. Many of our older adults were not very “tech-savvy” and nervous about all things web-related. Right away, we saw first-hand how Foster Grandparents were deeply affected by the digital divide. Our volunteers not only lacked the knowledge of how to use technology, but they also lacked the equipment and access to the internet.
As a team, we developed a few solutions to address this issue, starting with training. We now have a mandatory “Computing 101” course that includes setting up WiFi, how to log in and how to use Zoom. We have also teamed up with CyberSeniors, a national organization whose mission is to bridge the digital divide, and Rutgers Extension to provide online training content and services.
Besides virtual engagement with the students during the coronavirus, our volunteers have been packing and delivering lunches to students in local NJ communities and serving as School Greeters to walk students to their classrooms, because parents are no longer allowed in school buildings. Those volunteers who are more tech-savvy are helping as in-person guides and assistants to students learning virtually at home or in the classroom.
Foster Grandparents join the program to give back to communities and offer their time, wisdom and unique skills. We are so pleased that NJ FGP volunteers are able to continue to serve children and their families throughout this pandemic.
It is quite rewarding to see our volunteers in their “second act” of life learning new skills and becoming essential resources. “Volunteers add positivity, care, and warmth that the children in our center need to thrive,” Program Director Pat Staltari says. “The volunteers give that extra love and attention that many of our students are not receiving at home. We love our grannies!”
When you volunteer, you’re not just helping others — you’re also helping yourself. Volunteering leads to new discoveries and new friends. Additionally, in a two-year AmeriCorps Seniors study completed in 2018, 85% of participants said that volunteering helped stabilize or improve their health. Plus, 88% of the volunteers said that they felt less isolated and now have a new purpose in life. Other research shows that volunteering helps you live longer and promotes a positive outlook on life. Join us!
For more information on NJ’s Foster Grandparent Program, and to meet guest blogger Lauren Lamin and Grandma LuLu, one of her volunteers, watch Aging Insights, Episode 110 on NJFA’s YouTube channel.
Lauren Lamin (left) is a Program Coordinator with the New Jersey Foster Grandparent Program (NJ/FGP), an AmeriCorps Seniors program. NJ/FGP is sponsored by NJ Department of State, Governor’s Office of Volunteerism (GOV). Donna Teel is NJ/FGP Director and Rowena Madden is Executive Director GOV. For more information, visit https://nationalservice.gov/programs/senior-corps, follow @VolunteerNJ on Facebook, and email Lauren at firstname.lastname@example.org.
Many families and loved ones across the nation are held together by the support of their caregivers. Day in and day out, these brave individuals are the ones making the sacrifice to ensure the well-being of so many.
According to “2020 Report: Caregiving in the U.S.,” a May 2020 research report from AARP, there are an estimated 63 million caregivers in the United States, and this community continues to grow. With aging generations needing more to support their healthcare, many people are finding themselves becoming caregivers.
An intimidating role to step into, being a caregiver is no easy task – especially during a global pandemic. There are many struggles and challenges to face. However, as a nation and as a caregiving community, we are united in resilience to meet them head-on.
Over the years, the caregiving community, healthcare community, government and so many others have come together to bring resources to our bravest individuals – our caregivers. Whether in our homes or on our frontlines, there is always help. Let us show you.
Getting Started The caregiver role can take many shapes. It could be someone caring for an aging parent, a loved one with a disability or even a young adult caring for a relative. You could be getting groceries, helping with physical therapy, arranging appointments, administering prescriptions/medical care and much more. No matter what role a caregiver has, there are several first steps that every caregiver should take:
• Get a solid diagnosis: Having an accurate distinction of the disability or medical condition your loved one is facing will help you become a better caregiver. You will have more of an understanding of what you can do and what you should research to provide the best standard of care.
• Research: The more you know about the condition/disability, the better. This will prepare you for the care you can provide and allow you to have deeper communication with medical staff. Additionally, you can find and connect with caregiving resources that are more central to the needs you find (see below).
• Talk with Family/Loved Ones: It is important to include those who are relevant to your loved one throughout this process. The treatment your loved one receives and how the process is handled can become very personal, and tough decisions may need to be made. Having open and honest discussions can create a better circle of support and understanding as you all go through this together.
• Finances: There should be clear outlines of a financial plan to care for your loved one. Again, this involves talking with those who are relevant to the person needing care, as well as medical providers and insurance. Creating a well-thought-out budget will help you focus on the more important parts of being a caregiver, which will minimize stress.
• Complete Legal Paperwork: This might include a Power of Attorney, Advance Medical Directives, POLST form, wills, etc. Having these documents completed ahead of time will provide answers to questions down the road if the condition worsens, and alleviate stress. It is always better to be prepared, even if these are difficult conversations to have.
Connect with your Local Community There are 63 million caregivers nationwide, and you are never far from help. All across the country, there are people just like you who have come together to create resources for the community. Doing some research to find out what is available in your area can be extremely helpful when it comes to answering questions, finding the best care or even just finding someone to listen to. Locating your closest caregiving coalition, such as Caregivers of New Jersey, can provide you with a more personal level of support and resources.
Caring for YOU Caring for someone 24/7 is no easy job. When you spend so much time caring for others, you may forget to take care of the most important part of caregiving – YOU!
According to a 2020 AARP survey, 26% percent of family caregivers described their situation as “highly stressful.” High levels of stress can take an immense toll on personal health. As AARP notes in their updated May 2020 article, titled “Caregiver Burnout: Steps for Coping with Stress,” 4 in 10 caregivers experience depression, mood swings and resentment due to their position.
There are many resources that can help you avoid this burnout. One of the main things caregivers need is simply time away. This is where respite care steps in. Respite care is short-term or temporary substitute care to relieve the primary caregiver. This can be found through Caregivers of New Jersey, some senior residential facilities, Veteran’s associations, local adult daycares, your local Area Agency on Aging, or even just family and friends.
Do not be afraid to ask for help! The help is there; you just need to speak up for yourself. You cannot be a good caregiver if you cannot care for yourself first. Practicing this “put-your-oxygen-mask-on-first” metaphor is not only better for you but better for your loved one.
Caregivers of New Jersey (CNJ) (njcaregivers.org) is dedicated to providing a central point of contact on caregiving issues, resulting in more effective information dissemination, increased support, awareness and advocacy. CNJ offers a wide array of resources for the caregiving community in counties across NJ, including support coordination, coalitions, and advocacy, as well as training and events. CNJ always puts the caregiver’s best interest at the heart of everything we do.
Caregivers of New Jersey was formed in response to the growing number of caregivers within the state. With more than 1.3 million caregivers in the state, CNJ will work to shed light on the mounting needs of caregivers and the increased need for support.
You – or someone you care about – are older, and having trouble reading print. The simple act of scanning a printed page visually is now laborious and slow-going. It’s time to get that checked out with the eye doctor.
After running some tests, the doctor’s declaration is all-too-familiar and goes something like this: “You have age-related macular degeneration, which is the #1 cause of vision loss in people over 60 in the U.S. THERE’S NOTHING I CAN DO. I AM SORRY.”
Your heart sinks, the floor figuratively falls out from beneath you. Rage, sorrow, grief…all those stages described by Kubler-Ross run through your mind, seemingly at once.
Blindness is one of the lowest-incidence disabilities in the general population, so it’s likely you may not know or have never met a blind person. That doctor must be right; there’s no magic pill or surgery to fix you. Depending on the kind of eye condition you have there may be vitamin therapy or periodic injections into the eye to stave off the loss of more vision. It’s likely, though, that what you have lost will remain so.
Before we continue here, a disclaimer: I am not a medical professional and this blog is not intended to dispense medical advice. Know, however, that I have been part of the scenario just described and have personally spent too many years being angry at my diagnosis of juvenile macular degeneration. My hope is that my experience may save you lots of time in the adjustment process. And while you might have been told there is nothing to be done, that is not entirely true.
There are two commonly-held ways that disability (such as blindness) is perceived. One is the medical model: Your vision is diminishing and that eye doc cannot bring it back. That may be the case. Therefore, in some circles, you and your condition represent failure to a medical professional who has been trained to “fix” what is “wrong” with patients. Your eye condition cannot be brought back to 20/20 or whatever your best vision was. So, in a matter of speaking, there is, technically, nothing that medically or surgically can be done.
There is another way, however, that disability is viewed by those of us who have one (or more). Having a disability is just another way to be – a part of the grand spectrum of human diversity. And a disability needs to be accommodated so that a full life can be had, if that is what the person with a disability wants. Many laws guarantee this, including the 1991 Americans with Disabilities Act, granting equal access to public places, documents and the like as a civil right.
Yes, You Can…
After your diagnosis, the next step is YOUR choice. You CAN have a great life, continue many of the activities that brought you joy and satisfaction before your diagnosis. Your part is the willingness to try a new way to achieve the same ends.
For example, you enjoy reading the daily paper, adore certain magazines and relish best-sellers. What now? You can’t see the print sufficiently to read it fluently and comfortably. Know that the digital age brings with it opportunities to get the same content by downloading them or playing CD audiobooks and periodicals. You also can use assistive technology – software that magnifies and changes on-screen print fonts and colors or reads the screen content aloud. These are just some of the examples of what is possible. Do you love to hike, take bike trips, ski or travel around the world? I’ve done all of that with my diminishing sight.
Yes, you’re going to need some new skills, tools and techniques, not to mention emotional support from other people who already have or are walking the same path as you.
First, have your doctor tell you if you meet the parameters for “legal blindness” (there is, as far as I know, no illegal blindness!), which is that your best vision, with correction, is 20/200. This means that you see at 20 feet what a person without vision loss sees at 200 feet. (Note that I don’t use the term “normal” here; in my life, normal is just a setting on a washing machine, not a classification of the way anyone sees.)
The other element for the classification of legal blindness is a visual radius of 20 degrees or less. This relates to the radius of what your eye can see.
Most people who meet the criteria for legal blindness do see something. Blindness is a spectrum of the range of one’s functional vision. Only 10 to 15 percent of us blind folks see nothing at all.
NJ Commission for the Blind and Visually Impaired
Legal blindness entitles you to services from your state’s agency dedicated to people who are blind or have low vision. So next, contact the NJ Commission for the Blind and Visually Impaired (CBVI), which serves people throughout the lifespan. There are offices in Newark, Freehold and Cherry Hill. Their website is www.state.nj.us/humanservices/cbvi/. Call them at 973-648-3333 or toll-free at 1-877-685-8878 and arrange for what is known as an “intake interview.” A caseworker will collect the necessary information and determine whether you need training to continue a job you felt you had to leave because of vision loss, or perhaps you need training for a whole new career, or maybe how to live the life you want.
Have no second thoughts about requesting services from CBVI – you pay taxes and this service is absolutely there for us. Once you become a client, you can get aids and appliances of all sorts, FOR FREE, to make your life easier. A rehabilitation teacher may even come to your home (once the pandemic is over) to help label your stove thermostat, washing machine and the like to make them simpler to use by touch rather than sight.
There also are support groups around the state for people experiencing vision loss. Find one local to you by contacting Susan Vanino, the social worker at CBVI who coordinates the program, at 973-648-2821. You can also email email@example.com.
Support groups can be so helpful. Their members also are experiencing vision loss and some of the best tricks of the trade, so to speak, come from others who are a few steps ahead on the path. (Many groups continue to meet by conference call, Zoom or similar platforms to keep everyone safe and healthy.)
National Federation of the Blind of NJ
One of the best resources available is the National Federation of the Blind of New Jersey (NFBNJ), part of the National Federation of the Blind based in Baltimore. Check them out at www.nfbnj.org. I proudly serve on their Board. Be sure to look at the Senior Division at www.nfbnj.org/chapters-and-divisions/seniors/. This group meets by phone at 7 p.m. on the third Monday of every month. Annual dues are $5.
The 2020 NFBNJ State Convention, taking place Nov. 18 to 21, is virtual this year, and I highly recommend it. It’s free but you must register in advance at www.nfbnj.org/state-convention/. You’ll hear from engaging and informative speakers and learn about the latest in technology, including Smartphones that read the screen content aloud, dial the phone by voice and even coach you on taking a well-framed photo with its camera.
This brief blog easily could become a book so I will stop here. Remember, whether you are diagnosed with macular degeneration or a similar cause of vision loss, the choice of how you will respond is up to you. Be willing to achieve the same ends by using different means. It really works!
I’m happy to answer any questions or receive your comments about this blog. Please leave them here or if you’d prefer, email them to NJFA Communications Manager Sue Brooks at firstname.lastname@example.org. Include your contact information and I’ll reply.
Annemarie Cooke began losing central vision in early adulthood. She has Stargart’s Maculopathy, a congenital form of macular degeneration. A graduate of Douglass College of Rutgers University, she’s a former award-winning investigative and feature reporter for the Daily Home News (now the Home News Tribune). She later joined Recording for the Blind & Dyslexic (now Learning Ally), where her advocacy work often took her to Washington, D.C. She notes that the advances in assistive technology, combined with the wisdom and fellowship found in several support groups and the National Federation of the Blind of New Jersey, have helped her grow into a confident mentor in a state transition program for blind and visually impaired NJ high school students. Annemarie and her husband are semi-retired and live in a 55+ community in Burlington County, NJ, where she leads a support group for seniors with vision loss.
This article is one in a series of stories about how people across the country are using the Elder Index to understand the true cost of living for older adults and its economic implications. If you know someone who would like to receive information about these stories, send us a note at email@example.com.
Late this spring, New Jersey Gov. Phil Murphy faced a big problem that was all too familiar to other governors across America. The staggering economic impact of the COVID-19 pandemic had created a state budget crisis, with unemployment soaring and new annual revenue projections falling billions of dollars short.
Murphy approached the problem by moving back the start of New Jersey’s next fiscal year from July to October and passing a three-month stop-gap budget to tide the state over. Included in the short-term budget: Cuts to two important property tax-relief programs that help older adults in New Jersey afford to remain in their homes.
This was no small detail. New Jersey homeowners pay the nation’s highest property tax rates, about twice the U.S. average. Nearly 580,000 homeowners benefitted from one of the programs under the axe and 158,000 others took advantage of the other. Both programs primarily benefitted older homeowners and the combined impact of the cuts was expected to exceed $480 million.
Melissa Chalker, executive director of the New Jersey Foundation for Aging, understood all that. Along with AARP New Jersey and other advocates, Chalker immediately launched a campaign to convince the governor and state legislators to restore the critical programs. One of her key tools in advocacy calls and letters: The Elder Index.
“All of these communications would reference the Elder Index,” said Chalker. “It not only allowed us to tell policymakers that 54 percent of older adults in New Jersey have difficulty making ends meet, but a recent related report showed how effective one property tax-relief program in particular was in reducing the economic security gap facing older adults in the state.”
The index, developed and managed at the University of Massachusetts Boston, is a free online tool that provides realistic and detailed cost of living data for older adults living in every U.S. county. Combined with state-level income data, the index can also determine the percentage of older adults who have insufficient income to meet the cost of living in their states. UMass Boston’s Gerontology Institute published a report on state-by-state elder economic security last November.
The New Jersey Foundation for Aging and the Gerontology Institute have been working together for years to provide state and local leaders with clear data about the economic circumstances of their older citizens. The foundation helped promote legislation enacted in 2015 that requires an elder economic security report based on Elder Index data be maintained by state government as a public resource.
A companion report, prepared with Rutgers University and a consultant, analyzes racial and ethnic details in the data, as well other factors including the effectiveness of individual state programs in reducing elder economic insecurity.
“We want to constantly use the Elder Index to remind policymakers and people in state government that there is a need here with older adults,” said Chalker. “Whether it’s the SNAP nutrition program, housing or prescription drug prices, we’ve been able to send letters and testify at the statehouse on those issues stating the Elder Index data.
“We’ve also used it to arm our partners, whether they are funders, county office on aging staff or senior center staff to help them meet the needs of older adults in their communities,” she said.
But the foundation had always understood that housing expenses played an outsized role in New Jersey’s elder economic security problem. The online index can help anyone get sense of those dimensions in just a couple of clicks.
Here’s how: Enter New Jersey and national average queries for older couples in good health who own their own home without a mortgage. You’ll find total monthly expenses more than 20 percent higher in New Jersey, compared with the national average. Housing costs, almost double the national average in New Jersey, account for nearly all of the overall difference.
New Jersey Gov. Phil Murphy signs the state’s budget.
Data like that explain why Chalker and other advocates knew how important it was to save New Jersey’s property tax-relief programs. After a burst of calls, letters and op-ed columns, their efforts paid off last month. Murphy signed a new $32.7 billion budget for the remainder of the fiscal year, preserving both property tax relief programs for the future.
“I think the Elder Index was crucial in terms of the effort,” said Chalker. “You can anecdotally say how hard it is for seniors and tell some very compelling stories. But you’ve got to have metrics if you are making the case to policymakers and the elder economic insecurity reports provided what we needed.”
About the Gerontology Institute The Gerontology Institute conducts research and policy analysis in the field of aging, and offers lifelong learning and pension protection services to older adults. The institute’s priorities include income security, long-term service and supports, healthy aging, age-friendly communities and social and demographic research on aging.
Mornings on the golf course. Weekends with the grandkids. Vacations to dreamed-of destinations.
These are the visions of “successful aging” in many people’s minds, reflections of the one-dimensional view of growing old that is all too pervasive in our culture.
Not that those pretty images of retirement life aren’t experiences that people should desire. But without taking a deeper look at all the potential challenges and opportunities of growing older, many individuals will fail to anticipate later-in-life needs and desires.
In its advocacy work, the New Jersey Foundation for Aging routinely seeks to widen the lens that society trains on the lives and livelihoods of older adults, and the organization’s annual conference this year succeeded in doing just that.
Titled “2020 Vision for Successful Aging,” the conference, held virtually on Aug. 13 and 14, featured presentations on how aging intersects with a range of other policy issues from climate change to LGBTQ rights to immigration policies.
The conference also sought to open attendees’ eyes to the ways in which ageism is so widely normalized and internalized that it can often lead to us making uninformed individual and societal decisions that limit older adults’ choices in later years.
In a keynote address, Cynthia Hutchins, director of financial gerontology for Bank of America Merrill, said people shouldn’t avoid thinking about uncomfortable questions such as how long they might live and whether they will need some form of caregiving at some point.
“Longevity has changed the way we plan for our health and our health-care needs,” Hutchins said.
Previous generations didn’t envision living decades in retirement, but Baby Boomers and the generations that come after them will need to have a better understanding of such things as the limits of Medicare, the different options for long-term care, and how the financial and lifestyle choices they make early on can affect future health and happiness, Hutchins said.
In her presentation, Hutchins pointed out that, although one’s future health might be an unknown, there are useful projections individuals need to be aware of, such as that out-of-pocket health care costs between the ages of 65 and 80 can equal $114,000, and then grow to $247,000 by age 90 and $458,000 by age 100.
Figures like these might seem unbelievable to the average individual, but failing to adequately discuss and plan for future scenarios is what often leads to individuals having inadequate plans, and our government institutions having inadequate policies for the aging of the population.
At the root of our society’s unpreparedness for aging is often ageism, which includes the “prejudice against our future selves” that many of us possess.
Ageism was a focus of several workshops at the two-day conference, some of which examined how it can evolve into elder abuse or translate into a lack of advocacy on key issues that older adults and their advocates should be speaking about more often.
CLIMATE CHANGE + AGING
Climate change is foremost among those issues. Often portrayed as an issue of more concern to younger people worried about the future, what’s often overlooked is the fact that older people are the ones who tend to suffer the most harm from the severe storms and climbing temperatures that are already the result of our warming planet.
Jeanne Herb of the New Jersey Climate Change Resource Center at Rutgers Universityshared data showing that older people are at more risk of heat-related hospitalizations and more likely to have chronic conditions exacerbated by severe weather and the power outages and service interruptions that can result from them.
Similarly, older adults and their advocates need to be aware of how immigrants and people in the LGBTQ community are subject to more discrimination and barriers to housing and supportive services as they age, other panelists at the conference argued.
In addition, the coronavirus pandemic has brought to light the way ageism, and bias toward disenfranchised groups, can lead to alarming disparities in disease exposure and treatment outcomes and to the many gaps and weaknesses in New Jersey’s long-term care systems, many speakers pointed out.
Organizers of the conference hoped that it would serve as a call to action, and ideas were shared on how to combat ageism with intergenerational programming and through the arts.
The study entailed recruiting 72 individuals – ranging in age from 20 to 82 – to perform in skits that reflected age stereotypes. Afterward, participants were surveyed on whether the performances had altered their perceptions of aging and generational differences.
As director of Lifelong Montclair, a now-five-year-old age-friendly community initiative, York said she has come to “recognize the need for culture change as a foundational element of age-friendly efforts.
“As more people understand the scope and value of our work on culture change, I believe our work will be that much more significant, and those battles we face along the way will be that much easier,” York said.
Julia Stoumbos, director of aging-in-place programs for The Henry & Marilyn Taub Foundation, said the NJFA conference provided many useful insights into how the leaders of age-friendly communities can help change views of aging, and also the steps that community leaders take to support the goal of aging in comfort, dignity, and safety.
“Often, the approach that communities take in addressing the needs of older adults is compartmentalized. There’s a big emphasis on leisure and recreation – planning Zumba classes and bus trips to Atlantic City. There’s also a tendency to medicalize old age, with programs focused on how to combat it or treat it like a disease.” ~ Julia Stoumbos, director of aging-in-place programs for The Henry & Marilyn Taub Foundation
“Often, the approach that communities take in addressing the needs of older adults is compartmentalized,” Stoumbos said. “There’s a big emphasis on leisure and recreation – planning Zumba classes and bus trips to Atlantic City. There’s also a tendency to medicalize old age, with programs focused on how to combat it or treat it like a disease.
“Those narrow approaches can sometimes lead to older adults being treated as if they are separate from the rest of the community, as if they are less invested in issues that affect all people at all ages,” Stoumbos said.
“Older adults have no less of a stake in the major issues of the day. They need to be empowered to stay engaged on these subjects, and communities need to make sure they are bringing the generations together in conversations about the weighty issues that affect quality-of-life for all.”
The age-friendly movement was first envisioned by the World Health Organization in 2005 as a way to find local strategies to prepare for the global challenges and opportunities of an aging population. The North Jersey Alliance of Age-Friendly Communitiesis supported by The Henry & Marilyn Taub Foundation and the Grotta Fund for Senior Care. Together those foundations are funding age-friendly initiatives in 16 communities in five counties – Bergen, Essex, Morris, Passaic and Union – which together have a population of more than a half-million people. The alliance also works in partnership with NJFA, AARP New Jersey, New Jersey Future and Rutgers University.
Our communities are like structures that support people’s safety and wellbeing. One of the most important ways we can all contribute to this ongoing construction project is by looking out for warning signs of maltreatment. Does someone you know display any of these signs of abuse? If so, TAKE ACTION IMMEDIATELY. Everyone, at every age, deserves justice. Report suspected abuse as soon as possible.
Emotional & Behavioral Signs
Unusual changes in behavior or sleep
Fear or anxiety
Isolated or not responsive
Broken bones, bruises, and welts
Cuts, sores or burns
Torn, stained or bloody underclothing
Unexplained sexually transmitted diseases
Dirtiness, poor nutrition or dehydration
Poor living conditions
Lack of medical aids (glasses, walker, teeth, hearing aid, medications)
Unusual changes in a bank account or money management
Unusual or sudden changes in a will or other financial documents
Fraudulent signatures on financial documents
WHAT IS ELDER ABUSE?
Elder abuse is the mistreatment or harming of an older person. It can include physical, emotional, or sexual abuse, along with neglect and financial exploitation. Many social factors—for example, a lack of support services and community resources—can make conditions ripe for elder abuse. Ageism (biases against or stereotypes about older people that keep them from being fully a part of their community) also play a role in enabling elder abuse. By changing these contributing factors, we can prevent elder abuse and make sure everyone has the opportunity to thrive as we age.
HOW CAN WE PREVENT AND ADDRESS ELDER ABUSE?
We can lessen the risk of elder abuse by putting supports and foundations in place that make abuse difficult. If we think of society as a building that supports our wellbeing, then it makes sense to design the sturdiest building we can—one with the beams and load-bearing walls necessary to keep everyone safe and healthy as we age. For example, constructing community supports and human services for caregivers and older adults can alleviate risk factors tied to elder abuse. Increased funding can support efforts to train practitioners in aging-related care. Identifying ways to empower older adults will reduce the harmful effects of ageism. And leveraging expert knowledge can provide the tools needed to identify, address, and ultimately prevent abuse.
HOW CAN WE REPORT SUSPECTED ABUSE?
(This section has been edited to include links specific to NJ.)
No matter how old we are, justice requires that we be treated as full members of our communities. If we notice some of these signs of abuse, it is our duty to report it to the proper authorities. Programs such as Adult Protective Services (APS), the Long-Term Care Ombudsmen and Disability Rights New Jersey are here to help. If you or someone you know is in a life-threatening situation or immediate danger, call 911 or the local police or sheriff. The National Center on Elder Abuse (NCEA) directed by the U.S. Administration on Aging, helps communities, agencies and organizations ensure that older people and adults with disabilities can live with dignity, and without abuse, neglect, and exploitation. We are based out of Keck School of Medicine of USC. NCEA is the place to turn for education, research, and promising practices in preventing abuse.
This material was completed for the National Center on Elder Abuse situated at Keck School of Medicine at the University of Southern California and is supported in part by a grant (No. 90ABRC000101-02) from the Administration for Community Living, U.S. Department of Health and Human Services (DHHS). Grantees carrying out projects under government sponsorship are encouraged to express freely their findings and conclusions. Therefore, points of view or opinions do not necessarily represent official ACL or DHHS policy. LAST DOCUMENT REVISION: DECEMBER 2018
As a young child growing up in New Jersey, I recall spending countless summers in the sandy woods of Wall Township with my maternal grandmother, Carolyn Holland.
On her screened-in porch, we spent hours playing such card games as Pitty Pat, War and Casino. This card shark, with less than an eighth-grade education, showed me no mercy, winning game after game! Through these card games, she fortuitously taught me how to quickly identify numbered groups (subitizing*) and strategy (critical thinking).
My paternal grandfather, Robert E. West of Neptune, instructed me in the art of applying the correct tip for great service at the local Perkins Pancake House. Maternal aunt Doris Sergeant of Asbury Park cultivated my love of reading and storytelling through her reading aloud. Her fluctuating animated voice magically fit each and every character of the stories she read.
As I reminisce about these special moments as a wide-eyed, inquisitive youngster, I now appreciate them as authentic learning experiences. I truly cannot recall specific reading or math lessons or feeling that these moments were “school,” but as an educator, I recognize that the benefits of simple card games and stories read to me set me on the path toward academic success.
Although I assist teachers in applying curriculum and best-teaching practices to classrooms, the simple games, conversations and nightly read-alouds with Carolyn, Robert and Doris were invaluable.
COVID-19 and virtual teaching/learning
According to the New Jersey Department of Education, there are approximately 2,734,950 students in New Jersey’s public and charter schools who are now participating in some form of virtual or remote learning due to the COVID-19 crisis. Many New Jersey schools pivoted from photocopied worksheets and packets to working exclusively online with students in virtual classrooms.
In a matter of a few weeks, New Jersey school districts found themselves quickly gathering their troops of learning experts, teachers and educational technology departments to provide quality learning opportunities for all of their students. Families also found themselves banding together to navigate through digital learning platforms like Zoom, Google Classroom, Google Meets, Microsoft Teams, Class Dojo, Canvas and Blackboard.
Older Americans are teaching/learning, too
Older Americans also fearlessly accepted the call to join the ranks of the virtual homeschooling faculty. Because many parents continue to work as essential workers, older adult family members have been designated as the at-home schoolteacher. These older family members are ensuring that children are logging on, participating and completing school assignments.
One example is a 68-year-old grandmother in Mercer County’s Hamilton Township, Mrs. Jones. She joined the ranks of homeschoolers this March. Mrs. Jones is not only caring for her ill husband, but by working in online learning platforms to assist her kindergarten-aged grandson, has expanded her technological skill set.
Through perseverance and a little bit of coaching, Mrs. Jones is now more comfortable helping her grandson with the daily requirements of cyber-learning such as logging on to online class meetings; monitoring reading, writing, and math assignments in Google Classroom; accessing books online; following up with emails, and communicating with teachers via the Class Dojo app.
Familiarizing oneself with multiple learning platforms can be overwhelming even for the most tech-savvy person. But older Americans, like Mrs. Jones, are courageously balancing the duties of being a caregiver for an ailing spouse, running a household and homeschooling an active kindergartener.
I admire Mrs. Jones for her tenacity and grit during this challenging time. She admits that working with technology is frustrating, and she felt like giving up, but I encouraged her to take care of herself and to do her best. Her best is amazing!
Other ways older adults can share knowledge/expertise
I encourage all older adults who are caring for and/or homeschooling young family members to share their knowledge and expertise by:
Counting and grouping the number of tiles on the floor
Finding a pattern in the carpet
*I mentioned subitizing before. Subitizing is a hot topic in math education circles. It means “instantly seeing how many.” Math educators have discovered that the ability to see numbers in patterns is the foundation of strong number sense. Visit https://mylearningspringboard.com/subitizing/
Following a recipe using measuring spoons and cups
Writing a song together and recording Tik-Tok videos of you singing
Coloring in coloring books
Listening to books on tape or online together
This website features videos of actors reading children’s books, alongside creatively produced illustrations. Activity guides are available for each book. https://www.storylineonline.net/
Older adults have much to give and young people, much to receive! I would dare to guess that there are many Mrs. Joneses here in New Jersey. Are you one? You deserve our gratitude, respect and support.
As a New Jersey educator, I would like to thank all of the caring and brave older Americans in our state who are committed to sharing their knowledge, wisdom, love and expertise to help our students continue to grow and learn!
Dr. Smith is the featured guest on Episode 106 of Aging Insights, with host Melissa Chalker — watch “Learning Together” now!
We’d like to thank guest blogger and NJFA friend Laurie Facciarossa Brewer, NJ’s Long-Term Care Ombudsman, for her blog post.
By Laurie Facciarossa Brewer, NJ’s Long-Term Care Ombudsman
The COVID-19 crisis in long-term care facilities is an unprecedented national tragedy. Around the country, tens of thousands of vulnerable residents of nursing homes and assisted living facilities have died.
In fact, as of today in New Jersey, more than 5,400 long-term care residents have lost their lives due to the pandemic. To better put this into perspective, these deaths are more than half of New Jersey’s total cases.
Not only are the numbers themselves horrifying, but the inability of family and friends to physically be there with their loved ones in their final moments-as facilities were locked down to attempt to prevent more infection-makes it all the more painful and traumatic.
I mourn and hold dear the loss of each of these residents and wish peace and healing for their loved ones. And I am deeply concerned about the health and welfare of the long-term care residents who remain, and about the staff who care for them.
As an independent state agency that advocates for long-term care residents by investigating allegations of abuse and mistreatment, the New Jersey Office of the Long-Term Care (NJ LTCO) Ombudsman has been in the forefront in attempting to help residents and families deal with any issues or problems they may be having during this health emergency.
The investigation process
Usually, when we receive a complaint or concern, we make an unannounced visit to the resident in question and obtain consent to do an investigation.
Unfortunately, those visits stopped on March 13 when the federal and state government decided to severely restrict any visits to long-term care facilities, including by state regulators, families and representatives of the Ombudsman program.
The sudden inability to go into the facilities to witness what was happening there–to see firsthand the staffing levels and the physical conditions–and to have to rely on phone calls, FaceTime and other technologies to gain insight into what was truly happening, was very jarring and required some out-of-the-box thinking.
Fortunately, the NJ LTCO has highly seasoned and experienced investigators who have deep contacts in, and experience with, long-term care facilities in New Jersey.
In addition, the NJ LTCO has more than 200 highly trained volunteer ombudsmen assigned to an equal number of nursing homes. Under normal circumstances, these volunteers would be in their assigned nursing home every week, speaking with residents and handling their concerns.
So, even though we are not visiting LTC facilities, the NJ LTCO is well-positioned to reach deep into a facility and identify the right person who can solve problems for residents and their families.
Our volunteers continue to keep in contact with residents in nursing homes and have distributed letters reminding residents that the NJ LTCO is still here to assist them with any problems they may be having.
The dramatic increase in calls and cases
Our investigators have never been busier.
During March and April, calls to the NJ LTCO intake line increased by 40 percent, as did the number of cases opened for investigation.
The types of complaints that we have been receiving reflect the deepening crisis in long-term care. Here are some examples:
A woman called to tell us that her 56-year-old sister was on a ventilator, fighting for her life after being diagnosed with COVID-19. The long-term care facility in which her sister lived, she alleged, had refused to send her sister to the hospital.
A 71-year-old, bed-bound resident called the NJ LTCO to complain that she was not receiving her medication and that she hadn’t been changed–and was sitting in her own urine for more than 24 hours.
A nurse called to tell us that she was the only one who showed up to care for more than 60 residents during an evening shift in a nursing home.
A man called to see if we could find his mother, who was COVID-19-positive, had a fever and had been hurriedly moved out of her nursing into another one–with no advance notice to the family. He didn’t know if his mother was dead or alive.
A family member called to report that he was informed that his father had a fever, that COVID-19 was suspected and that he was fine. He was called 90 minutes later and told that his father had died.
Multiple staff members called the NJ LTCO intake line to report that they were not given proper personal protection equipment (PPE) in order to care for residents safely.
Dozens of family members called us to state that their loved ones died of COVID-19, alone and without family by their side. Most of these callers alleged care neglect due to poor staffing.
As this crisis unfolds into late spring and early summer, it appears that there is more PPE and more testing available. These are the two things that are absolutely critical to stemming the tide of this horrific virus and getting to a place where our office, state regulators, and families and friends can once again visit long-term care residents.
Stepping up outreach
In the meantime, here at the NJ LTCO, we continue to adapt to this new reality. While we look forward to the day when we can go back into long-term care facilities, we are stepping up our outreach to residents via newsletters, direct phone calls and utilization of tablets and smart phones.
In mid-May, we began to distribute a resident-focused monthly newsletter to residents of long-term care facilities. In the inaugural edition, we remind residents that they have rights and that they can always call us for assistance. In addition, we remind them that most of them will get a $1,200 stimulus payment as a result of the COVID-19-related CARES Act and that this money is theirs-and no one can take it from them.
Conditions at long-term care facilities; hope for the ensuing months
I wish I could say that the tragedy of COVID-19 in our long-term care facilities was totally unforeseeable, but that would not be the whole truth. While the scope and speed at which the COVID-19 tragedy unfolded were certainly new, the conditions in many of our long-term care facilities were ripe to fuel this type of situation.
In the ensuing months, it is my hope that we will see the effects of this terrible virus wane in long-term care facilities. In its wake, I am sure that there will be a clear-eyed assessment of how we, as a society, could have done more to protect vulnerable elderly and disabled people living in residential settings. We have learned much about this virus and the terrible toll it can take in long-term care facilities. My expectation is that we all will apply the lessons we have learned so that we are better prepared for any future outbreaks.
The thousands of souls we have lost and the thousands of vulnerable elderly and disabled people currently living in long-term care facilities deserve at least that much.
See resources at the end of this blog, including information for caregiving during COVID-19.
A Caregiving Report by AARP’s Susan Reinhard and Lynn Friss Feinberg revealed that in 2017, about 41 million family caregivers in the U.S. provided an estimated 34 billion hours of care to an adult with limitations in daily activities. Support included basic functional activities (such as help with eating and bathing), household chores (such as meal preparation and help with shopping), and medical/nursing tasks, to help individuals remain in their homes and communities for as long as possible.
The estimated economic value of their unpaid contributions was approximately $470 billion. By comparison, all out-of-pocket spending on U.S. health care in 2017 was only $366 billion.
Here in the Garden State, nearly 2 million New Jersey residents — this writer included — provide varying degrees of unreimbursed care to family members or friends who are elderly or disabled and limited in their daily activities. Another AARP report noted that the services caregivers provided in the state had an annual value of more than $13 billion.
The prospect that someone will be a caregiver, or potentially need a caregiver, by 2030 is great because the nation’s population is changing and will mark a significant demographic turning point by then, according to the U.S. Census Bureau’s 2017 National Population Projections.
The year 2030 is when all baby boomers will be older than age 65 — meaning that one in every five U.S. residents in 2030 will be of “retirement age.”
In a press release revised in Oct. 2019, Jonathan Vespa, a demographer with the U.S. Census Bureau, said, “The aging of baby boomers means that within just a couple decades, older people are projected to outnumber children for the first time in U.S. history. By 2034, there will be 77.0 million people 65 years and older compared to 76.5 million under the age of 18.”
Conversely, a recent story in the Daily Record of Morris County spotlighted the 100th birthday of Carmela “Millie” Scarnato. A newly minted centenarian, Scarnato is still a caregiver for her son with special needs, who is 57.
COSTS AND CHALLENGES
The work of a caregiver, AARP notes, can often morph into a part-time job or more, and cost caregivers more than $600,000 in lost wages and missed Social Security benefits over a lifetime.
“That lack of training makes their lives more difficult and makes it more likely that those they are caring for will fall, get infections, or suffer from dehydration or malnutrition,” Gleckman says in the article. “And as family members increasingly are expected to provide nurse-like wound care or complex medication management, their need for training is even greater.”
Gleckman cites a study published in JAMAInternal Medicine indicating that 93 percent of family members caring for an older adult said they had never been taught how to do this difficult work.
WHAT’S HAPPENING IN TRENTON
In 2018, a bill was signed into law creating the New Jersey Caregiver Task Force to evaluate caregiver support services in the State and provide “recommendations for the improvement and expansion of such services ensuring that New Jersey is doing all it can to support caregivers who provide invaluable services to loved ones and friends.”
The NJ Caregiver Task Force consists of representatives from the public and private sectors.
“Studies show that the emotional and physical health of caregivers often suffers as a result of the stress and physical demands they encounter, particularly when it comes to caring for people with dementia or Alzheimer’s,” said Assemblywoman Vainieri Huttle, a co-sponsor of the bill, in a press release. “This task force will take an honest look at how we can better address these needs.”
The Task Force will:
Identify and survey caregivers in the state, in order to develop an aggregate summary of caregiver characteristics, including age, geographic location, the amount of time spent in caregiving activities and acting in the caregiver role.
Solicit testimony from caregivers on the nature and type of tasks they perform; the feasibility of task delegation; the availability and sufficiency of caregiver training programs, financial support services.
Submit a report to the Governor and the Legislature detailing its findings and providing recommendations for legislation, or for regulatory or programmatic changes.
“Caregivers devote their lives to their loved ones, often missing work and missing out on wages, and this is going to become more of a concern in the coming years with an aging population,” noted Task Force member and Commissioner, New Jersey Department of Human Services, Carole Johnson.
If you’re a caregiver, or will soon become one, consider the following:
Hire an elder-care attorney to draw up financial and medical power of attorney documents, plus determine if a loved one is eligible for other services. Watch episode 86 of NJFA’s “Aging Insights” TV program, “The Three Most Important Documents,” at https://youtu.be/axmetvdDQQ8
Learn about expanded paid time off for caregivers. Watch “Take the Time You Need,” episode 95 of NJFA’s “Aging Insights,” at https://youtu.be/gJrnqz_Mehc